Monthly Archives: October 2013

A long way from home….My journey as a mom having a child with special needs (Part 2)

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Like I had said before, this is going to take me some time to write because of the tender nature of the subject for me. With that being said, this is part 2 of my journey with Kali girl.

After the initial scare with Kali when she was a newborn had passed, the next few years were what I would call, normal. Anyone knows that no 2 children are alike. We are all so different and so perfect in our own ways. Well, that’s how I looked at my girls. My oldest was extremely bright since birth. She was always that happy child and overly creative. Kali was a little different. Not different bad way, different like every child is from one another. She was such a happy little girl. Always smiling and loved the camera. My little poser. She has always had the sweetest spirit, very loving and always had these eyes that when you looked in them, you knew that she was a deep well. Lets fast forward a few years.

We are now at age 3 and my sister and I are both coaching girls soccer for both Kali and Chloe, my oldest. If you want to learn patience, come from competitive sports and coach 3 and 5 year old girls soccer. 🙂 We were hosting a team party for both the teams in order to talk to all the parents. There was about 25 kids in my house at one time. Kali didn’t want to go hang out with the kids, she wanted to be around the adults. Ok, fine. No big deal to me. At the time, my sister was a teacher and was originally going to be teaching special education. While we spoke to the parents, Kali walked around fixated on a soccer ball, but only having one sided conversations. She was what we call, “Stuck in her own world”. My sister turned to me and said, “I think you may want to get her tested…”. Now, I’m not the type of parent that’s in denial, I realized there was something going on that day that didn’t seem “right”. We took her into her Dr.’s to get evaluated and they diagnosed her with Asperger Syndrome. Now, I didn’t know a thing about this. Being me, I dove in, read everything and studied everything I could get my hands on. Autism wasn’t rampant then, there wasn’t a lot of information about it really. it was still considered a newer diagnosis. I soon realized that she in fact, did not have Aspergers but they really didn’t know what was happening. Fun fact, Aspergers can not be properly diagnoses til the child reaches at least Jr high….So there you go. She was 3, not 13.

After this first diagnosis, things started to spiral down hill fast…Kali was then diagnosed with Pica and started eating dirt, glass, rocks and other non edible substances. She would take the glass balls off the Christmas tree and eat them like they were apples. Glass everywhere. She ate my Best of Sinatra CD…like chewed it up….such a good CD too. (shes was never hurt, don’t worry) She was now in preschool and was tested in. They had her under the Autistic Spectrum. She had also been diagnosed with Sensory Processing Disorder. Basically, this means that when we need to move our arm for some reason, our brain signals our arm to move. This is a process that happens without us having to give much thought about it. Kali’s brain wasn’t working that way. If she needed to move her arm, she would study the other children on how to do so, then, eventually her brain would send a signal to her arm to move. This is the easiest way for me to describe it. Nevertheless, this was extremely difficult to get Kali to respond to anything because her brain wasn’t processing it quick enough. So, I have a soon to be 3 1/2 year old who has (according to the Dr.’s) Aspergers, ASD, SPD and Pica. This was a lot to chew on, fast. I didn’t have time to sit around and feel sorry for myself. Early intervention is key, so I got to work fighting for Kali. We thought our life was beginning to get some kind of order to it. Then, everything changed….

I remember the day like it was yesterday. I went to go lie down, I had been in my room for maybe 30 minuets and I hear my husband yelling Kali’s name. I knew something was terribly wrong. Its that sense you get as a mother that something is very wrong. I flew out of bed and ran in the room. My husband had Kali standing straight up. Except her feet weren’t touching the ground. She was stiff as a board, non responsive, not breathing, jaw clenched and eyes rolling back in her head. My husband was panicked, absolutely beside himself. “She wont breathe! She wont breathe!! Come on baby girl, come on!! BREATHE!!”  I immediately called 911. This went on for what seemed like forever. Everything slowed way down. I could hear the ambulance in the distance and ran to go open the door. They rushed in and she had  finally come out of it. They took her, again, by ambulance to the hospital. I was in the back of the ambulance with her. She was really out of it. Very tired. The paramedic tried asking her questions and she wasn’t responding. They rushed her in, she was on oxygen and a very scared little girl. She had a seizure. A very large one and this may have not been her first. My brain was scrambled and I couldn’t breathe. This is not how I envisioned my life! What did I do wrong?! Its funny how we think situations like this are a punishment. Its easy for our brain to think that this child was “broken” in some way, that I did something to “cause” this to happen. I was only just 23 when I found out how strong I was, when Kali first stopped breathing and 26 when I found out how completely wrong my thought process had been…then started my journey….

Kali girl age 3

This was Kali right before everything changed. I have yet to see her that smile like that again. Change is comin though!

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I’m going to warn you, you’re not going to like what I have to say about this…

Fact, there are 150.6 million people in the US claiming to be Christians. This is both hilarious to me and funny as hell. Not funny in a good way. I am disgusted at the behavior I have seen on Facebook and the internet, through our streets, in our families, at our churches and our schools…There is so much hate and bashing that I’m completely baffled. What happened to honor, love, kindness, gentleness, GRACE!!! What happened to faith that God has all things under control!? And what the hell happened to prayer and the power that holds!??

I have seen and heard postings wishing the president nothing but bad, hoping the obamacare system fails, bashing and bashing and more bashing. Now, I’m no rocket scientist, but the definition of insanity is doing the same things over and over again expecting different results and you want to go back to how things were?! This may not be the answer but the way the system was, isn’t the answer either. Here’s the problem, we are too busy fighting with each other that we forgot how to fight. Aw the success of the enemy…Let’s get both sides fighting for justice and we will distort things so much that they can’t even see what they are doing!!! (Insert evil laugh). What a bunch of crap and we are falling in line all “fighting for justice”, disgusting. How is bashing the president, spewing hate all over any different than the Westboro churches, picketers at the abortion clinics, the guy on the corner condemning everyone to hell or the church saying we are all sinners still! Oh, wait, did I strike a nerve? No, news flash, we are NOT all sinners still. We are saints, saved by grace, forgiven and redeemed, sons and daughters of the King. Start acting like it!

Are there a lot of bad things happening? Yep. So open your mouth, pray, love, do the opposite of all the crap you see! Holy cow people, we are in a spiritual war against principalities and things unseen, NOT against flesh and blood! When are we going to realize that all this talk only fuels things in the spirit realm and it’s not our side our hate is fueling? Even Jesus got upset and turned over the tables in the temple. It’s called righteous anger. However what he did afterwards is the lesson. We get stuck in the drama. Typical. It’s the cleansing of the temple, the crap being driven out. Let me ask you something, if you were there when this happened, and the way you are currently operating, would you be driven out too? Mathew 21:12-17 will help you with that question. :).

We have been given authority to speak to the mountain and it will move! SO SPEAK! Open your mouths and pour out your prayers, pray with authority and stop your begging! Last time I checked, royalty doesn’t beg. We are ALL royalty. ALL! Yep, that word all includes the president. Some just don’t know it yet. Sometimes the hardest people to love is your family. If you looked at your child and spewed the hatred towards them that you are towards our country, what would happen? We want change but all we do is curse.  Eph 4:26-32 MSG (26-32) “Go ahead and be angry. You do well to be angry—but don’t use your anger as fuel for revenge. And don’t stay angry. Don’t go to bed angry. Don’t give the Devil that kind of foothold in your life.  Did you use to make ends meet by stealing? Well, no more! Get an honest job so that you can help others who can’t work. Watch the way you talk. Let nothing foul or dirty come out of your mouth. Say only what helps, each word a gift. Don’t grieve God. Don’t break his heart. His Holy Spirit, moving and breathing in you, is the most intimate part of your life, making you fit for himself. Don’t take such a gift for granted.  Make a clean break with all cutting, backbiting, and profane talk. Be gentle with one another, sensitive. Forgive one another as quickly and thoroughly as God in Christ forgave you.”

What if all 150.6 million people in the US that claim to be Christians actually acted like it, prayed like it, responded like it, what an amazing world we could live in…

Suck it up buttercup

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Ok, news flash, the world doesn’t revolve around you! Gasp! I know, I know, I can wait until the initial shock wears off. Hey, me too though! I go through this as well. You know what I’m talking about, those times when your just going through some junk and everything seems to offend you, or every posting seems to be talking to you… We all have these days to some degree, it’s weather or not you admit it. I’ve realized when I’m having theses days, I’m usually a lot more snappy. Now, the person I end up making a snarky comments to is never the person or thing that’s actually bugging me and I end up having to apologize for being a brat. People deal with their junk in all different ways; some completely shut off and retreat, others post 1000 bible verses or quotes on Facebook making sure everyone knows “their ok!” the funny thing about this is, of your in an actual relationship with these people in some way, you can read right through the bull crap. Some people let it all out on every social network they can get their hands on and then call everyone they know. Others get real quiet and try to process. Others worry and worry and worry. Whatever one you are, how’s that workin for you? I can be many of theses things. I can be the one that retreats, or the quiet one and even the snappy one. The thing is, no matter how we respond, we need to realize that seeing others this way is showing us something. We can easily react to all the chaos and get offended. (That’s actually the most common way I’ve seen.) or we can look at the situation and see how we can better help instead of make their pain about us. Everyone is going through something and some point. Why do we often take someone’s else pain and make the entire situation about us?! “can you believe how rude that person was?” “did you see —– post? I know it was about me” ” so and so hasn’t even called me back!” Any of these sound familiar? They do to me! I’ve been there, done that. The problem here is that this never helps anyone. Do not add fuel to the fire. Instead, see how you can help without any strings attached. This is not a “get out of jail card” for the people going through crap, it’s a “grace card”, it seems to go further. 🙂
I’ve personally experienced a loss of friendship over Facebook. Yes, Facebook. Now, obviously there were other factors present. This person was in a lot of pain and going through a big hurt. I post about fun stuff and success or excitement in my life. I can also call stuff out from time to time. Not to start a war, but to make people stop and think. I was posting regarding one thing and she took it on as something I was saying to her….now, funny thing is, anyone who knows me, knows I don’t have a problem with confrontation. Meaning, if something has bothered me, or I feel like I’ve offended someone, ill ask! This alleviates so much unnecessary drama. Well, she did not ask, took it on, stopped following me and being my friend over this. I asked and followed up but she kept saying nothing was wrong. (obv I found out there was). Needless to say, we parted ways. At the time, this really hurt and I was really frustrated about it. Now, I’ve forgiven and moved on. Looking back, wow, this whole thing could have been alleviated by basic communication, not taking on everything like the world revolves around you and learning to give grace and maybe even the benefit of the doubt.
I’ve done this same thing and received this same thing.
Now, for the people going through some junk….suck it up buttercup. I don’t mean this is a harsh or insensitive way. I mean it just like it sounds. Get outside your circumstances and help someone in need. Laugh, smile and for God sake, turn off the depressing music!! Stop posting on Facebook and start getting real with yourself. Find the root of the pain and rip it out. Forgive, move forward and walk in the truth that God is so much bigger than your circumstances. Call a friend to have coffee and only listen, pray your way out of it, do something besides sit in wallow in your own disparity.
Imagine yourself in a desert. You’ve been there for days. You look down and there is a a puddle of clean water to your right. To your left, there a pile of more sand on top of the sand…Well common sense tells you to take the water, drink it up and be refreshed. But you don’t. We don’t. We decide the much better option is to ingest the sand. This will take over your body and slowly kill you. It may not be one gain of sand that does it but the hundreds and thousands that we ingest day after day, will. This is no different that dealing with our crap when we are going through it. We know how to get ourselves out of it, all we need to do is drink the water. But we don’t. We choose the sand and our negative thoughts (the sand), will eat us alive. I personally have gotten better at realizing this, but it’s still really hard when your gong through something. Sometimes, you just don’t want to do anything but watch movies and eat ice cream. Have a day, but no more, force yourself out of it. I’ve known a few people with cancer in my life. I’ve also know them to be some of the most positive people to be around. Why? I figure, that once you come that close to death, you realize the power or your thoughts and words. You recreate what you think and what you say. If its negative, it works to destroy your mind, body and spirit. If its positive, it works to empower you in every way. Positive thoughts and words of life actually give life.
So, if your going through something or know of someone dealing with their junk, choose to speak words of life into the situation, choose the water and watch it turn around.

A long way from home…My journey as a mom having a child with special needs. (part 1)

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On July 29th, 2003 My Kali took her first breath. She was perfect in every way. A chubby baby from the beginning. I love chubby babies! I truly believe it’s the only time its adorable to be chubby is when you’re a baby. Lets be honest here… She had a faint cry and didn’t really scream. Her sister was 2 and when she was born, she screamed. So that concerned me at first. Her scores came back perfect and her oxygen level was good, so I didn’t have a reason to be concerned…..or so I thought. My delivery wasn’t really a piece of cake and I had started to hemorrhage and bleed out. Now, I don’t really remember too much after that but I do remember a bunch of blood being rushed in for a blood transfusion and the Dr. and nurses rushing around. I remember 4 or 5 shots going into my legs to stop the bleeding. Meanwhile, I was more concerned with the faint cry of my child. I think they were able to get the bleeding to stop without the transfusion, but I honestly don’t remember and neither does anyone else. That’s how much chaos was happening at that time. You tend to block it all out and in that moment when your life is a huge concern, as a mother, your child’s life is more of a concern….always. We took Kali home and all was well until day 3. She was 8lbs and 13oz when we took her home and had lost weight since we brought her home. Completely normal, however, she had lost a good amount of weight. She started projectile vomiting. Ok, I’m not talking about throwing up a good distance; I’m talking about vomiting a good 4-5 feet. No exaggeration. I went in the room to take a nap and about 30 min later, my husband came rushing in with my 4 day old baby not breathing. She had vomited and aspirated it. She was blue. My husband was freaking out and I flipped out. I called 911 and started trying everything I knew to do in order to get her to breathe. I had even tried to pinch the bottom of her feet so she would let out a scream. Nothing. I just prayed and cried watching my 4 day old baby girl suffocate. I could hear the faint sounds of the ambulance in the distance. All of a sudden her color came back and she let out a scream.  My husband and I both were hysterical but trying to hold it together for our 2 year old. Her vitals checked out but her oxygen was still low for comfort. I got on the stretcher and carried my baby in the back of the ambulance. They put an IV in her and oxygen up to her face. Flipped her around like she was a rag doll checking all her vitals. We were transported to Loma Linda children’s hospital where we were there for 3 nights and 4 days. Little did we know that this was the start of many visits and stays at that hospital. They ran test after test after test on her little body. They took x-rays and didn’t let her eat. She was 4 days old, that’s it. The most innocent little baby and as a mother, I could do nothing. That’s the worst feeling in the world. She screamed for hours because she was hungry and hurt. She would only be soothed by me. So, I walked around the hospital children ward for 24 hours straight, bouncing her on my hip. It was the ONLY thing that calmed her down. We tried giving me a rest and having my husband or mom take her. She wasn’t having that. So in my exhaustion, mentally, physically, emotionally, I had a perseverance that I didn’t realize I had. That protective nature comes out, the “mama bear” so to speak, and I would do whatever it took for my child…..

After a long 4 days, they found nothing. Weird huh? A little acid reflux that they said was pretty bad, but that was it. They were still concerned about how much she projectile vomited and how often, that they prescribed her medication. After 4 different medications, some 2 and 3 at a time, and zero progress, I had enough. I told the Dr. I was done and to take her off all of the medications. Meanwhile, she had her immunizations. She was 5 months old and at one time, she had 9 different immunizations at one time (3 shots with 3 immunizations in each). 9!!! Now, with a 5 month old baby, who is already on 4 medications and then gets 9 more on top of everything, do you think that a baby’s body or brain could handle that? Would you take 13 different rounds of medications and viruses? I didn’t know any better. I just listened to what the Dr. said. Looking back now, I would do so much different. Isn’t that life though? We learn from our mistakes and life choices and move forward with the knowledge to make better choices.

This is my journey and it will take time to tell. Please be patient with me 🙂

To be continued…..

Who am I?

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I basically started this blog to be able to let it all out, so to speak. While everyone and their mom thinks that social media is there for us as platform to voice our opinion for everyone to hear regardless if they agree or not, I am sick of hearing about it all. What happened to “speak words of life?”.  I’ve noticed that it’s basically a platform to bitch on, or to spew religious banter. God forbid if someone doesn’t agree with you or your opinion on something… just click “unfriend” or “unfollow”. Surround yourselves with only people that agree with everything that you say and think. Don’t ever surround yourselves with people that make you feel uncomfortable or challenge your views! And whatever you do, you can’t be kind to them when they do make you feel uncomfortable!!  Hey, I’m guilty too. But what a boring life that is! I often say that if you find yourself comfortable, try to do something that gets you uncomfortable because that’s where your character comes out and true growth happens. With all that being said, “who am I?” is the question.

Well, I am a few things to many people. I am a mom of 3 girls. Yes, 3 girls. (Pray for me) I have a few friends with 5 girls and more! Pray for them too :). Anyway, I am a mom and a wife; I’m a sister, daughter, worship leader and women’s activist. I am the daughter of Yahweh and a sledgehammer. I’m an artist, hairstylist and makeup artist. I’m a musician (don’t be that impressed. I’m working on it still.) and a business owner. I’m an entrepreneur by heart. I love when God shows me the root of someone’s chains and allows me to come and rip it out. I love to see God destroy the enemy’s lies and transform hearts. However, I battle too. I come to my end and want to scream. I have pity parties and want only chocolate and wine and more chocolate. I can’t tell you how many times I’ve wanted to walk away from leading cause it got hard. I’ve heard it said, “The harder the battle, the greater the destiny”.  Well that sounds nice and all, but when you’re in the middle of your junk, sometimes it’s hard to even care….Following these next few weeks, I’m going to share what it’s like to have daughter with special needs, why I don’t care to get wrapped up in all the government crap, what being a wife means to me and what I’ve learned about being a mom. I’m going to talk about why many women can do what men can, but why would we want to?! Why coffee is so important and why keeping a strong sense of identity is key to surviving life, why life isn’t fair and never will be, why middle school sucks and how I feel about most churches in a building and what does “community” mean….oh so much to  chat on!! Let’s begin…

P.S. I reserve the right to change my mind, and change my mind again and again and again. 🙂